Sunday, December 30, 2007
Andrew brings peace
The boys are doing great. No monitors went off at all yesterday and Elliott pooped. I am sure he feels better. I think we are still battling with reflux issues, but I am going to talk to Dr. Maini about that tomorrow. I am so excited because my BFF is coming today. She is amazing and I don't get to see her nearly enough. Also, I get to have whatever I want from Pizza Hut!!! It's the small things = ) I guess I am not really eating these days. I am either feeding the babies, calming them when they don't feel well, sleeping, or pumping. There really isn't time to take care of myself. Andrew does not work this week and I am going to take advantage of that. I am going to get my hair cut, a pedicure, and my eyebrows waxed....I am in dire need to have an eyebrow wax...or threaded. Anyway....I can be freaking out all day about how I think the boys are sick because they spit up too much or because they aren't pooping and then Andrew comes home and makes me think everything is fine. I am so happy that he will be home all next week. I am excited to go to the doctor tomorrow to have the boys weighed and measured. Also, thanks to Jillian I might have a way to feed my boys the good stuff...mothers milk!!! I am still struggling with the fact that the boys have mostly formula but have not given up hope. The Medela website seems very helpful.
The boys are developing their own personalities. Elliott lets us know when he is angry while Aaron seems a little more laid back. I just can't wait to see what they are like a few months from now!!! Well...Aaron is waking up and probably wanting some lunch. Have a super day!!!
Jen
Friday, December 28, 2007
No eye worries
Elliott hasn't pooped in three days...unless he poops tonight. I called the doctor to see what they wanted me to do and I was told to give him sugar water. That is way more fun than a suppository!!! I also let the doctor know that he was very gassy. She said to give him Milecon drops to make him more comfortable. I was going to have Andrew get it on his way home from work but Elliott was so uncomfortable he didn't sleep for like an hour. He was even slightly unhappy when being held. I went to Walgreens and found Little Tummies. He seems to be sleeping much better now. He also loved the sugar water. I just don't know when to give it to him. She told me to give him an ounce 3 times a day, but an ounce is kind of a lot when they don't even eat two ounces at each feeding. If I give it to him before he won't be hungry and he won't take it after. I gave it to him an hour before he ate, and he had a difficult time finishing his bottle. I am sure I'll figure it out. Later tonight Elliott beeped 10-12 times. His heart rate was down and he had stopped breathing. I was washing bottles. Andrew said that he shook him a little (not like baby shaken syndrome shook him!!!). He stopped beeping at about the same time Andrew shook him so it's hard to tell if he did it himself. I kind of freaked out and cried and am still pretty upset. I kind of want to take them both back to the NICU and keep them there until they are like 3 months old. This worry is making me crazy. I am trying so hard to not worry and give it to God, but they are my children!!! My only children. Oh my....I hear one of the babies really crying...I think I need to go change diapers and feed them!!! Please pray for my little guys...
Jen
PS...I didn't forget about Aaron. He is doing well. I think he has more of a reflux problem and has issues sleeping because he is laying too flat...even though we have them propped up. He is so cute and gaining weight I am sure...he has a double chin!!! Hopefully he will be out of the car bed and into his carseat in the next week or two = )
Wednesday, December 26, 2007
He finally passed!!!
Well...we have had a busy couple of days. Elliott FINALLY passed his carseat test on Christmas Eve =) I cried I was so happy. I think it was because one of his favorite nurses, Rebecca, was there to do the test...and they let him test in an actual carseat not a carbed. Now the boys are sleeping side by side. They are so cute. In the picture, Elliott is on the left. They sleep pretty well together. In fact, last night was the first night that Aaron did not have to be held for an hour while he was sleeping. He just needed his brother I guess. Andrew and I are so proud of our little boys and their progress. He is at the doctor with Elliott right now while I am supposed to be napping while Aaron is asleep. I am pretty tired. The night before last, Andrew got up at every feeding and diapered and fed one baby. I thought I should get used to him not doing that since he won't be able to when he has to work the next day. He got up at 2:30am but I did the 5:30 and 8:30 feedings myself. It's hard work. I have to pump each time they eat so it's a little hard to get sleep. I think I will venture out today and use some gift cards for a baby monitor, diapers, formula, and bottles. Annie was awesome enough to get a ton of receiving blankets and burp cloths. The amount of laundry really has surprised me. They are such little guys to have so much laundry!!! Oh my...I am beginning to fall asleep as I write this...I guess I should just give in to the sleep!!!
Jen
Sunday, December 23, 2007
sleep is awesome...I miss it =)
Elliott is being a poop...he did finally poop last night after some help, but he pooped tons!!! It was army green. Today he was put back on the pulseox (I just don't know how to spell that) today so that everything that is monitored can be downloaded and they can see what he is doing and maybe why he isn't passing his car seat thing. He will be tested again on Monday or late Sunday night. The sleep disorder center place that will look at the downloaded information from the monitors is not open on the weekends so I am guessing that is why they are waiting until Monday to test him again. I brought his car seat to the hospital and I think he would pass in it because it doesn't lay flat like the carbed. His nurse tonight said that his heart rate did go down enough 2 or 3 times today that the alarm dinged 1- 3 times. This really isn't a big deal. He didn't need any help to bring the rate back up and I am guessing that if full term babies were put on monitors they might ding as well. Aaron dinged again today for a low heart rate. I just stared at the monitor, seeing that his heart was still beating, until it stopped dinging. It only dinged 3 times. Aaron was sleeping soundly...maybe he got too relaxed. I guess I don't want Elliott home if he isn't ready but it almost sucks more to have one baby at home and one in the NICU. Plus...the baby that is in Aaron's old spot might have NEC....so so so very scary. I need to sleep a little before I get to get feed Aaron at 2:30. I am super distracted so I am not sure this makes much sense. Later taters!!! Keep on praying..and I love your comments. I would reply if I felt I had time..I could make time...maybe...just know that I love reading your comments!!!
Jen
Friday, December 21, 2007
Guess who's home?
Andrew here: We brought Aaron home last night after the 8:3opm feedings. It was hard to say goodbye to Elliott for the night as we took only Aaron with us, but we couldn't help but be excited. The car ride was pretty good, but it was obvious he didn't like his restraints in the preemie car bed. He did pretty well overnight with sleeping, and took all his feedings well. But we were a little concerned a few times when he was making some grunting noises and sounded uncomfortable...don't think it was pooping either, since it was on and off for a couple of hours. He does have a small portable monitor, though, and it only went off once during the night for a low heart rate that immediately corrected itself. We mainly just enjoyed having the quiet and privacy to love our little boy and hold him for as long as we wanted.
Friday:
Today was Aaron's first doctor's appointment with the local pediatrician. He didn't do so well in the car bed. It didn't help that I made a wrong turn on the way to the doctor's. But he spit up once on the way there, and cried quite a bit. Once we got there, the appointment went well, with the doctor giving us some helpful hints about cleaning around his goopy eyes, and making him more comfortable at home. The only thing that didn't go so well was his spitting up 2-3 times on the exam table. (We might have learned not to feed him right before an appointment.) On the way home, he hardly cried at all, and didn't spit up either.
We have only really had time to make a few phone calls into the hospital to check on Elliott. He failed his car seat test again today, which is frustrating. He has trouble keeping his vitals where they need to be during the test. He seems to be doing well with his feedings though, and they say his bowels are still sounding good, even though he is still having trouble pooping. They were giving him another suppository tonight. Jen will most likely be going alone to visit him tonight, as I stay to watch Aaron. She will be taking one of our new car seats with her to have them try the test on him again...either later tonight or tommorrow. Even though it's all a bit overwhelming still, we are both sure it would be more so to have them both home at once. This is about as good as a transition as we could hope for.
Plus, I can't complain. I just typed that last paragraph one-handed with Aaron sleeping snuggly in my left arm. :)
Thursday, December 20, 2007
mixed feelings
As you can see Santa did come to see the boys today. It was super fun. Aaron just kind of slept the whole time...I think he liked Santa's beard. Elliot was awake and very hungry. They didn't like getting into their elf outfits but didn't really mind them once they were back in their beds and sleeping...waiting on Santa to get there. Next year is going to be SO MUCH FUN!!!
Both boys are doing great. Elliott's belly is fine, but he needs to poop. Aaron pooped twice for sure today and I am pretty sure he had pooped again tonight but I didn't want to wake him up to change him so close to a feeding time. If the babies are awake and worn out before they are fed then they don't eat as well because they are too tired. Anyway...during rounds today Dr. Hocker said that they were doing great and that Aaron will probably come home TOMORROW!!! Elliott still had to pass his car seat test...which he failed again. He is just not ready to come home. His pulse ox can't go below 88 and it did within 15 minutes. It has something to do when them laying flat. So I kind of freaked out because I guess I didn't really think that they would ever let me take them home so we are not ready. We didn't have any diapers and I just felt we needed a nurse with us too!!! They have been out of my belly for 3 weeks and I haven't had to do anything for them. I feed and diaper them as much as possible but I am not with them 24 hours a day!!! I am nervous to have Aaron home and I really hate leaving Elliott. Now they will be apart yet again and Elliott is left at the hospital without his little bother. I know that he won't even know but it still makes me sad. I wanted them to come home together so bad and it looked like they would. I am happy in a way because this means that Elliott will have longer to be watched super closely so they know he doesn't have NEC. I am still feeling positive that Elliott will be home by Christmas. Andrew and I still have to take a CPR class, learn about the monitors, and watch them give one of the babies a bath. Oh...the car bed has to get in the car and I think we have to show that we can buckle Aaron in or something. It seems like a lot to pack in tomorrow...when Andrew is working, but we will figure it out. I just might be holding a baby when I am typing tomorrow. Oh...this is just for Jillian...I will email you back soon!!! Just need to find time =)
xoxo
Jen
Wednesday, December 19, 2007
gas
Jen
Monday, December 17, 2007
No more feeding tubes!!!
Well...you have read it correctly. Elliott and Aaron are feeding tube free!!! They started taking all their feedings from bottles today and have done AWESOME!!! What amazing babies we have =) Aaron passed his carseat test but hated being in the carbed. Elliott also hated being in the carbed and did not pass. The nurse thinks he just made himself too upset...then he puked. I think he just wanted to let Aaron be first at something...what a great big brother!!! Both boys are gaining weights. Elliott is at 1790 grams. That is in between 3lbs 15oz and 4lbs. Aaron is 1660 grams. That is 3lbs 10oz and 3lbs 11oz. I bought carseats today that were recommended by the hospital. They will be a Christmas present from grandma Schwiderski. They can actually be in the carseats instead of carbeds if they can both make it to 4lbs. I think the hospital still wants us to use carbeds. Both boys also received their first RSV shot thing. I found out that our insurance will cover the shots one way or another...apparently they are very expensive. I also may have the proper identification (other then certified copies of their birth certificates) to apply for social security numbers for the boys.
I went to the OB today for a follow up visit. Nothing really happened but I ran into Dr. Boyd (he delivered the babies but I saw Dana the midwife before the preeclampsia crap) on the way out and the nurse person told him about my milk issues and he wrote a prescription for Reglan and told me to take more Fenugreek. The boys Dr...Dr. Hocker, told me I can try to get them to latch on once a day and encouraged me to kangaroo them. YAY for kangaroo!!! All of the prayers for healthy boys seem to have been answered. Stuff could still happen but I am thinking that since there are people praying for our boys all over the country...well at least the Midwest, Pennsylvania, Florida, and Kansas...they will be home before we are ready. Thats a lot of people and a lot of places for two little guys!!! Thanks so much for reading and caring about our babies. I can't wait until they can meet every one of you =)
ps
Julie...let me know about my typos!!! I don't proofread and am usually doing other things while I am typing...not always paying attention to what I am writing.
Sunday, December 16, 2007
coming home soon?!?!? Elliott and Aaron are 3 weeks old!!!
xoxo
Jen
Saturday, December 15, 2007
all good news
xoxo
Jen
movin' down...but it's a good thing
xoxo
Jen
Thursday, December 13, 2007
finally together
So...I went into the NICU tonight and it looked like other parents were holding Aaron!!! Then I realized that it wasn't Aaron and he must have been moved. Well...he was moved...right next to Elliott!!! It finally happened. Andrew and I were able to sit next to each other, each holding and feeding a baby. It was super...plus the great night nurses put them in matching outfits...complete with hats and booties!!! I love Rebecca and Roxie!!! Aaron is up to 3lbs 5oz, Elliott is 3lbs 9oz. Both boys are getting 4 bottle feedings a day and Elliott is taking 30mL of milk while Aaron is still at 27mL. Elliott's isolette was set at 29.?? and Aaron's was at 30.??. They are very close to the same so I am really hoping and praying that they will be able to go home the same day. Andrew fed Aaron tonight. He took all but 4mLof his bottle. Elliott took all but 2mL. Elliott didn't regurge at all and Aaron just spit up what a normal baby would spit up. They are making steady progress which is so very good. It's just hard not to be a little negative...just to prepare myself if they do slide back a little. This kind of thing happens often in the NICU, and I don't want to be super sad and disappointed. Oh...both boys have had head sonos and both are fine. Elliott either has a benign tumor or extra perivascular space...both are fine and he will grow out of them. Aaron passed a hearing test and Elliott's hearing test is tonight. Having a deaf baby is by far the least of my concerns!!! Well..that's all the news I have. Thanks for reading!!!
Jen
love those babies!!!
Jen
Wednesday, December 12, 2007
so sleepy
Elliott
Elliott didn't have any new orders after rounds with the doctor today. He took his entire bottle last night and this morning. His nurse told me that he regurged last night after he ate but she thought it was because he was working so hard to poop...then he had massive poop in his diaper. At least we know that part of him is working well!!! I fed him last night and he took that entire bottle too. His nurse said that he will probably be moved to three bottle feedings a day now and that since he is almost 3lbs 8oz (he weighs 1580 grams and 1588 grams is 3lbs 8oz), he will probably also be getting more at each feeding. He hasn't had any brady cardia episodes in a couple days and is also doing well keeping his temperature. His issolette was set at 29.1 (I think) and when he can keep his temperature when his isolette is at 28 then he can be put in an open crib. I think it's 28...I am not good at remembering numbers. He looked super good and his nurse (I think her name is Roxie...awesome) let me hold him for a long time. He was so cozy sleeping on his mommy!!! So...once he is in an open crib and can keep his temp then all he has to do is continue to eat and gain weight and not stop breathing and keep his heart beating. The boys eat every three hours so they eat 8 times a days. They have to complete all 8 of their feedings from a bottle before they can go home. I don't think either baby will make it for Christmas but maybe before January.
Aaron
Aaron also finished his entire bottle in the morning and at night and he is now taking 27mL at each feeding. He didn't have trouble with any reflux stuff. He should be moving to 3 bottles a day as well. As of yesterday he weighed 1440 grams...that is almost 3lbs 3 oz...1446 grams is 3lbs 3oz. I haven't been to the hospital yet today and I haven't called because I want to talk to the nurses after rounds and they probably haven't finished rounds in Elliott's room yet. I am sure that both boys are doing awesome. Aaron had this super great nurse last night, Rebecca. I like her lots. She was feeding a different baby. I asked her if I could take Aaron out to hold him and she said that was fine. I wrapped him up in a blanket and held my little sweetie. I tried to put his hat on but I dropped it on the floor so Rebecca brought a different hat...it was a snowman...so cute. We have pictures that I will put on Snapfish probably tonight. We left the camera at the hospital because Rebecca and Roxie were going to try to get the boys together for a picture. Roxie had Elliott night before last too and said that she took him to see Aaron...Aaron was sleeping but she put Elliott's face up to Aaron's and told him it was his brother. They have been trying to move them into the same room for like a week but it hasn't happened yet. Roxie said that they tried to move Elliott in with Aaron and she was sad because Elliott is her best baby. It ended up not happening. Maybe they were able to move them last night...who knows. I think that both boys are super and the nurses in each of their rooms don't want to give them up!!!
If you don't have the snapfish album and you would like to see pictures of the boys, give me your email address and I will send you the album. I didn't want everyone to have it at first because the early pictures of the boys are so scary. They look so fragile and their skin looks like it hurts. They look better everyday!!! Thanks for reading a praying and being so super supportive!!!
Jen
Monday, December 10, 2007
Magic Blog!
Well, after freaking out about it in general, she took the morning and afternoon off, away from the hospital. And then, when we went in tonight, they had nothing but good news for us. Their feedings went well this afternoon.
And I was just in time to do Aaron's feeding. He was crying when I got there, and I was surpised to be able to calm him down within seconds by just showing him some attention. Then, with the feeding, he took over half of what I was given to feed him. And the rest of it went down easily through the help of his feeding tube. I have to admit, I was more proud of myself that he took the bottle from me, than of him for keeping it down, because last time I wasn't as successful. Afterward, I just held him for what seemed like 5 minutes, but was probably closer to 35, because it flew by, just feeling needed by one of our little guys.
So back to the magic blog.... Both boys took all their feedings without spitting up much and Jen noticed that they looked clean and happy to not be laying their faces in any puke. So she feels like yesterday's stressfulness that was described in the blog, made things magically fix themselves today.
But I think we both know, that it's less "magic" and more of God just showing us that He takes all of our cares away. Whenever we feel like it's more than we can handle, one little pressure point melts away, and we realize that "He will never give us more than we can bear." (can't find the exact verse right now, but I know that's in the Bible.) Thanks for your continued prayers!
Jen here...just wanted to make a little note that Elliott's PICC line was removed this morning so now both boys just have the stickers on them so their heart rates and respirations can be monitored. Just to understand the feedings a little more...they have to take at least half of their feeding with a bottle for two days before they add another bottle feeding. Right now both boys have two bottle (the NICU nurses say "nipple feedings") a day. Before they can leave the hospital they have to be able to take all their feedings from a bottle (or me if the doctor says it's ok). They also have to continue to gain weight, keep their temperature in an open crib, and sit in their car seats for an hour without needing help from a nurse to breath or keep their hearts beating. There is still a lot to do but considering they are having to do this stuff 2 months before they were supposed to I think they are doing very well!!! WOO HOO=)
puke...and the babies are 2 weeks old
I didn't get to the hospital until
Elliott
His nurse tonight told us that he took more then half of his nipple feeding and that she would feed him again at
Aaron
I came in and told Aaron's nurse that I would like to Kangaroo him but it was time for him to eat so she was going to let me hold him while being fed through his feeding tube. He was wide awake and so cute. He looked like a regular baby...kicking his feet and moving his arms around. I just wanted to pick him up and take him home. He second nipple feeding was to be at
Andrew just told me that I need to make a separate blog for me feeling and keep this one just Elliott and Aaron updates...maybe I should.
Jen
Sunday, December 9, 2007
kangarooing is the BEST!!!
Elliott
I don't know if I mentioned that Elliott (at his last weight check) weighs 3.3 pounds now!!! What a little fatty = ) I found out that he is up to three nipple feedings a day. I guess that sometimes we need to know the questions to ask because they don't tell us everything that happens. At his feeding this morning he took 12ml. I think his bottle had 25ml in it...maybe more. He was puking often today but I think it was because he was being fed formula. I am providing them breast milk but am having a hard time making enough for these guys...I'm a little worried. I asked a nurse why they were being fed formula even after I had given them lots of ml of breast milk today and she explained that they mix fortifier in the milk and have to have a certain amount of milk to mix the fortifier in. I am guessing that the nurses don't do the mixing but I am not sure and feel too tired to find out. I know that they are getting breast milk when ever it is available. Hopefully I will start making more then they can consume and then they won't have so much indigestion. On a happy note, I finally asked to kangaroo Elliott. His nurse seemed annoyed and asked if I just wanted to hold him and I was assertive and told her I wanted to kangaroo. It was then best!!! I haven't felt that close to either baby since then were inside. I can't wait to kangaroo Aaron tomorrow and maybe Elliott too!!! Elliott just slept on me. It was the sweetest thing ever...I just can't wait to get them home!!! Elliott, later, peed on me.
Aaron
Aaron as of today weighs 3 pounds. He will probably be nipple feeding twice a day starting tomorrow. I fed him today with a bottle and he took half I think but I usually don't know how much they start with. He will be eating 27ml. His nurse said he will stay at 27ml. He will still gain weight and grow, he just won't be getting more for awhile. Aaron was also pretty pukey today but, again, I think it's because his belly digests milk better than formula. I am hoping they will be back to milk tomorrow. There is nothing else new with Aaron...I guess I could mention that he peed on his nurse today. Oh...I saw the mean nurse in his room and started to freak out but she isn't his nurse...YAY!!! I am sure he will sleep better knowing he doesn't have the mean nurse. Both boys are pooping a lot....YAY!!! I feel kind of bad because Elliott's paragraph is longer than Aaron's...I did explain some stuff in Elliott's and I didn't get to kangaroo Aaron...tomorrow I hope!!!
off to bed....
Friday, December 7, 2007
what?
Today I was tired and wanted to go home to sleep but with having to pump every two hours...how much sleep can I actually get? SOOOOO TIRED!!!
Elliott took all his milk from a bottle this morning at 8:30. I am so happy that he is doing well with nipple feeding. He also is at about 3 pounds 3 ounces!!! He was really squirmy today. His nurse told me that after the break at 3 he had turned himself sideways in the isolette. I think he was trying to escape. When I came to see him after eating dinner and pumping and talking to a bunch of moms, he was starting to move but got stuck with his head against one of the portholes. He is so funny. He already knows what he wants.
Aaron took most of his nipple feeding. I had to stop because of the shift change. I think he could have taken it all. He didn't puke it up either. He pooped twice last night and once this morning. I think it helped him!!! He will also start taking caffeine orally instead of thought his IV. Aaron is also gaining weight. He is not as big as his brother but he is working to gain weight and learn what he needs to learn to go home. I am a little worried because I saw the mean nurse before I left at 7 and don't know if she is Aaron's nurse tonight. Andrew and I didn't see her when we were there so hopefully she is with a baby she likes.
I have to go to sleep...I don't know if I am making any sense...is sense spelled right? I think its right...good night
Jen
Thursday, December 6, 2007
no more IV nutrition!!!
Aaron was so sleepy today and a little cranky. I was able to nipple feed him (meaning that he fed from a bottle) at 5:30. I had a difficult time getting him take any of it so his nurse showed me some stuff to try. She was able to get him to take close to the whole bottle (15 CC's). Then he threw all of it up. It was pretty sad to see since he worked so hard to suck, swallow, and breathe...also that I worked so hard to make that milk for him!!! I am thinking that maybe he needs to poop. Aaron was also taken off his IV nutrition. He is gaining weight and is now sooo close to 3 pounds. Elliott is still weighs more then Aaron but Aaron seems to be working hard to be big like is brother. I was able to hold Aaron for a long time as he finished eating from the tube. He started to get fussy so I sang to him and he stopped.
so much pee!!!
I (Jen) was able to bottle feed both boys today and do the take the temperature/change the diaper routine. Elliott was perfect...he was pretty still when I was changing him and didn't freak out when I was taking his temp. He gets all mad sometimes to have a thermometer in his arm pit. Aaron was on the other end of the spectrum. He was so wiggly and fussy when I took his temp and kept scrunching his legs up when I was trying to change his diaper. I was working soooo hard to change his diaper, (I don't know how many of you have had to change a diaper on a teeny baby through the portholes in an isolette keeping in mind that it's important not to tangle the wires too bad, but it's not that easy) I had one hand on his tummy and the other was moving some wires out of the way. Then I thought I felt wet on my hand and instead of keeping his "peepee" covered, I lifted the diaper and he peed everywhere!!! I managed to get pee on the ceiling of his isolette!!! At the same time he spit up....He is trying to prepare me for bringing him home I guess!!! I am sooo ready for my boys to come home...I know that it wouldn't be good for them to be home now but I really wish they were home with us...I really wish we had our own home to bring them home too!!! All in good time right?
xoxo
Jen
Wednesday, December 5, 2007
The mean nurse
Elliott drank 11 cc's from a bottle today....then I think he spit it all up later...but at least he is figuring out some hard stuff...how to suck, swallow, and breath all at the same time!!! He is continuing to gain weight. Tonight he was wide awake and was really looking like a "regular" baby. He was super squirmy and was working very hard to pull out his feeding tube. Yesterday was the first day that I heard him making baby noises...not crying but the little baby noises, so sweet. When I was feeding him today he was very awake and looking at me. I think he knows I am his mom even though the nurses are with him more.
Aaron no longer has his pulse ox monitor....this happened yesterday. He was also given his PICC line over night on December 2nd and 3rd. While I was feeding Elliott, Aaron's nurse gave him a bath. I was with Elliott when I heard a baby crying in the other room. I said to my sister Carrie "I hope that's not my baby" and then it turns out that it was. He didn't like his bath much but he was calm and oh so sweet when we saw him. He was wide awake for a few minutes and then he started to fall asleep. Taking a bath can really take a lot out of a guy!!! Aaron is also gaining weight and was able to maintain his body temperature even with both of his isolette doors were open.
Both babies are still have some difficulty digesting. They seem to be having a contest over who can puke the most. I think that Aaron is winning at this point. I was able to hold Aaron for the first time today. His nurse was mean and was blaming him for puking...like he can help it...we don't like her. While I was holding Aaron, he looked all around and then looked at me. We talked about how mean the nurse was and how I could smuggle him out. We decided that since I didn't have a car, car seats, or a winter suit for him he should stay in the hospital. OH..I was changing Aaron's diaper and got peed on for the first time by one of my own babies!!! Elliott peed all over himself when the nurse changed his diaper at the same time.
That's all for tonight. I am so tired and really need to go to bed. xoxoxoxo Jen
Monday, December 3, 2007
Gainin' weight!
Wow, that was a tangent.
As far as the rest of the news, both boys are eating well and Jen was able to give Elliott a small amount of milk from a bottle today. He even held his temperature outside of the incubator for 20 minutes while she held him and fed him, so they say that we should be able to do something called Kangaroo care with at least him as early as tomorrow. That's where either Jen or myself would hold him skin-to-skin against one of our chests for optimal warmth and comfort.
Both boys are getting rid of waste very well now, too. We were worried about Aaron, because he has needed a couple suppositories already. But he went twice on his own today. Does Jen get this detailed? :)
We are so happy and hopeful as they continue to run at the top of their class! Of course, they could still have their bad days ahead, but we feel like it may not be as unlikely to see them coming home for Christmas...and we are praying for just that!
Sunday, December 2, 2007
Elliott and Aaron are 1 week old!!!
I can't believe how much I love these little guys. They are just so awesome!!! As Andrew and I look for a house to raise our boys in, I find myself looking at the neighborhood more than the price. I just want them to have the best of everything. I am a little worried that I am going to be over protective at first but you kind of have to be with preemies...especially in the winter. We have been told that it is not safe to take our boys out after they come home from the hospital. Newborns are very susceptible to illnesses like RSV. Preemies are even more at risk. They can wind up back in the hospital with RSV and that is just not something I am willing risk for a trip to Walmart or even a family gathering. We have also been told that we need to be really cautious about keeping our hands clean and making sure that people that come to visit the boys use Purell or wash their hands often. There are things we don't even think about like how dirty purse straps are or winter coats. It sounds crazy but really....is letting someone hold our babies with their coat on or with unwashed hands worth another stay in the hospital for them? We are just going to have to be extra careful for a while so I hope everyone can be understanding.
Well...I guess I am done. Thanks for reading and praying for our boys.
Jen
December Firsts
Elliott continues to eat well and is digesting his food well. He no longer has a "pulse" ox monitor and also continues to breathe well without any aids. The nurses reported that he has settled down a little....hasn't been throwing his famous Elliott fits =) He is now on regular feedings instead of priming.
Aaron had several feedings held yesterday and early this morning because so much was coming back in his asperate (this may not be spelled correctly). By early morning Aaron was receiving primings again and when the doctor checked in on him he started him on regular feedings. He has not been pooping so he was given a suppository . As mentioned above...it worked!!! Hopefully he will be able to poo on his own soon.
Both boys are looking better everyday. They still have a lot of growing and learning to do but they are strong and smart. We love them soooooo much!!!
Saturday, December 1, 2007
crappy night
Elliott was moved to room 2 today. I went to where he used to be to see him and was a little freaked out when he wasn't there!!! It's good that he was moved. His nurse told me that he is first on the list to move the room 3 or 4. Aaron is in room 3. Elliott was wearing clothes tonight and was so cute with his eyes open. Also, he is no longer under the blue lights for jaundice! He is digesting well and breathing great too. I just can't wait until he is in the same room as his brother and hopefully at some point the same crib. I think they miss each other. Elliott's nurse said that he has a temper = )
Aaron was supposed to get a pic line today but the NICU is so full they were unable to locate a warming bed so he will have to get it another day. The pic line will allow Aaron to be comfortable on his belly because it will replaced the line through his umbilical cord. I know that Elliott was happy to get on his tummy. Aaron is doing very well too. He was soooo cute tonight sleeping on his side. His nurse told me that it was time to take his temperature and change his diaper and that I could do that if I wanted.....I told her that I just couldn't wake him up. After a few minutes I went ahead and did the diaper change and took his temperature. He didn't like it very much but calmed down quickly. He opened his eyes and was looking all over the place. So curious...so sweet. He has been having problems digesting. Several of his primings were held today. Primings are feedings with breast milk (if I have supplied enough) or formula. Both boys are being primed now. It's a less amount then a regular feeding in order to prime their tummies for real feedings. Since the boys came early, their digestive tracks are not quite ready. Problems with digestion are normal for preemies. Anyway...Aaron hasn't been digesting his food so primings are held so he doesn't get sick. He receives nourishment another way. They will keep trying to feed him, making sure before each priming that he has digested. Aaron is also no longer under the blue lights for jaundice. I don't remember if I mentioned that his feeding tube is now through is nose instead of his mouth. The tubes bother the babies in their mouths because they feel it. It seems to bother Elliott more than Aaron, Elliott gags on his!!! Aaron looked great tonight and I feel confident that he will be able to digest very soon. I can't believe how much I love my little guys!!!
Andrew's mom and sister came back to visit. It's pretty awesome to have so many people that love us and our boys. Sometimes it's hard to pretend that everything is okay when it isn't but I am sure that things will get better. The boys are doing great and now all we need to do it remember that we have lives and that not everything can be about the babies. Andrew and I need to stay away from the hospital at times to keep our sanity and lean on each other for support.
Thanks for reading!!!
Jen
Thursday, November 29, 2007
Andrew's 6th update 11/27/07
So many wonderful things happened today! Both babies came off of their antibiotics, because there were no blood infections found. Both babies began receiving formula also.
Aaron had a full day of no problems with breathing due to his new small dose of caffeine. He's the easiest to spend time with, because he's always peacefully resting or gently stirring and the doctors are able to just check in on him now and then. (I had a great moment with him last night, that I forgot to mention, when he woke up and followed my face back and forth with his eyes, checking me out for a little bit. It was highlight of my week since the birth!)
Elliott got his first all-day blue light treatment for jaundice, and he's responding well. They say he will be moving to an isolette like his brother soon, once he is downgraded from the bigger "c-pap" to a "canula" (just nasal leads going in) Also, within a day or two of downgrading that, they hope to move him to the intermediate care room with his brother Aaron.
I guess the big news is Jen got to finally visit with both boys today and she was soooo grateful. She had been waiting for almost 2 days since the birth, and even though it was hard to see them in their small and fragile state, it took a lot of the mystery and fear out of how well they were being cared for.
Jen's blood pressure has dropped for the better...at one point 134 over 78, which is the best so far this week. And she is eating like there's no tomorrow! She's on track to be out of here by Thursday or Friday at the latest, and she'll be waiting patiently in the Mother and Baby wing now, instead of the labor and delivery wing where she had been for a day and a half after the delivery.
Now, I know that all this sounds good, but probably the biggest thing for the Hickses is that we are very close to a pending sale of our house in Indiana. We had a pretty good offer today that we are accepting, so we don't have to worry about warming the house through the winter and paying a sizable monthly mortgage on a place we don't live. We figure it's one less thing to worry about since there are a few other things on our mind now:)
It's days like this that make me realize that God's truly watching out for us and wants to give our recently-doubled family the best chance at a good start.
Andrew's 5th update 11/27/07
As for Elliott, he's receiving warm humidified air through a small mask just to his nose, but no oxygen is needed. It's all forced room air. He may be going down to a smaller breathing aid soon that is just a tube with nasal leads. When this happens, he will be most likely moved to intermediate neonatal intensive care, which is where his brother Aaron was moved today.
Aaron is on no source of forced air except for the controlled climate of his incubator, which we are able to open whenever we want ... to give him some gentle attention. His only problem of concern was that he has forgotten to breathe a couple of times tonight, once when I was standing at his side. The nurse simply comes over and jiggles him a little and he goes back to breathing as normal. She alerted a doctor shortly after the second time, and they are adding a small dose of caffeine to his supplements to help remedy it. This should only be needed for the first few days as his lungs finish forming and getting used to all this.
I know I should be sleeping right now, but you all are so important, and I can't possibly keep up with calling and texting everyone like I should. I can only say that I've never felt more welcome in our new home of Peoria and look forward to showing these guys off to all of you....as soon as we track down the missing camera cable we need to pull pics to the web!
Andrews 4th update 11/25/07
Jen is in recovery, resting and the doctors say everything looks good with her.
Thanks for all the prayers, everyone! So far so good!
Andrew's third update 11/25/07
Andrew's second update 11/24/07
Andrew's first myspace update 11/22/07
The boys
A small update for today and yesterday....
Elliott was taken off c-pap yesterday and given a cannula. He remains under the blue lights but was doing well. He looked so cute laying under the lights all sprawled out. He looked all relaxed like he was tanning on a beach. I went down to see him this morning and apparently he was acting crazy!!! His nurse said he just couldn't be still. He had pulled out his canula several times and was sucking on it = ) He also pulled off his "shades". He continued to pull them off and the nurse had to turn off the lights and position him on his tummy to calm him down. The nurse said she thought he was feeling much better and decided he wanted to get out of there = ) They continue to tell us that Elliott is doing great and will move where his brother is soon. Andrew and I went back tonight to see the babies. Elliott was taken off his canula because he had it pulled out more then it was in, and he was not having any trouble breathing. His skin looks good and they will remove the lights from him soon. He has a little rash on his skin from the stuff they put on him when he is under the lights and his little palms are super dry!!! He has my skin....sorry Elliott. Also, great grandpa Shurts was able to meet the boys and Andrew and I were able to hold Elliott for the first time. It was amazing!!! The line from Elliotts bellybutton was removed today and he was given a pic line in his left arm just in case he need medicine. It doesn't hurt him like IV's hurt us.
Aaron did not have any changes yesterday. His nurse told me that he was doing very well and the blue lights for jaundice would be removed from him in the next couple of days. Aaron has been pretty consistent through his first few days of life. A couple of nights ago he was so cute laying on his side with a tiny pillow between his tiny knees and his ankles crossed!!! We tried to get a picture but it's hard to do that when he is in an isolette. Today Aaron was having some trouble digesting his food. He missed a couple feedings. Everything else with him was fine and the nurse thought they might take him out from under the lights tomorrow. When we saw him tonight, his canula was also removed and his feeding tube was moved from his mouth to his nose. Both babies have had a hard time with the feeding tube in their mouths. They don't like how it feels on their throats and try to get it out. Elliott has especially had a tough time, gagging on it and what not. Anyway....Aaron looked good tonight. The nurse told us that he was given a suppository to help him poo since he hasn't pooed in a while. This will help get the yucky stuff out of his tummy so he will be able to eat. His nurse also said that he was pretty fussy so she fed him a litlte through a bottle nipple and he was able to do it!!! After he had some stuff in his belly he was happy again. I think Aaron smiled at Grandpa Shurts.
The boys seem to be in an unspoken competition...Aaron gets a cannula, Elliott has to have one, Elliott gets rid of his cannula, Aaron had to get rid his his, Elliott gets under blue lights, Aaron gets under blue lights...so funny!!!